First Day of Private Therapy

Wednesday, June 20, 2007

Caroline finally had her first day of private physical and occupational therapy. Prior to this, Nevada Early Intervention Services (NEIS) has sent people out to our home once a month or so - not nearly enough therapy to give Caroline the help that she needs.

Our insurance took its time to approve her therapy. It has been unbelievably frustrating - to want to make sure our girl has the best care possible, to know that she needs it, and to know there's only so much you can do about it.

Anyway, Caroline is now getting what she needs. The Occupational Therapist (OT) saw her first. Her name is Kathy, and she was great with Caroline. She brought us back into a smaller room that had cute, baby-sized toys and a clean, raised padded platform for her to work with Caroline on.

She first held and re-positioned Caro a few times just to get a feel for her. As she did this, we discussed Caro's medical history. (PS - so nice to have her start hands-on work immediately - everytime NEIS sends people out to our home, they spend the first 45 minutes of the appt. doing paperwork and asking irrelevant questions - they barely touch Caroline - goes to show that the private sector is always more efficient!)

Then, the OT got a "baseline" picture of her - meaning, she evaluates where Caroline's developemental level is at the beginnning of therapy. She noted Caro's strengths and weaknesses: low muscle tone, ability to keep her head in midline (she can hold her head straight while lying on her back), good feet and toe reflexes, slow tracking with her eyes, beginnings of rolling over, and more. Then, she brought in the Physical Therapist (PT), who also got a baseline picture.

We talked about our goals for Caroline. They were both very positive - I heard several comments like "we'll fix this" "we can help her there a lot" "we will see big changes in her." I am elated that Caroline now has such proactive help. They also gave me homework and tips for us to do with her.

They then discussed how often they could see her. I hoped for them to get her in once a week (it took awhile to get her into this particular therapy center, due to its high demand). They told me that they'd make room in their schedules to have her come in 3x a week to begin with and have her come in 5x a week when more slots open up! I couldn't believe it - finally people that understand Caroline's needs. (Later I realized how much driving, etc. that would be for us - oh well, at least C will benefit.)

Caroline stood up to the whole thing quite impressively. By the end of the PT and OT appts, she was exhausted from her workout (picture how you feel after spending a couple hours in the gym - that's how Caro feels after a few minutes of therapy)! She slept soundly all the way home.

About the pictures - those were taken this morning before the therapy. She is in one of our favorite outfits (isn't the back part of the outfit so cute?!?)


  1. I just needed to tell you that I think your little girl is absolutely beautiful and I am amazed at you and your support to her. I dont know you and you dont know me, but I got to your blog by accident. I am a friend of Cassaundra Hull's and while I was viewing her blog, my two year old came in and started pressing buttons and it took me to your blog. Your beautiful words about your daughter and the struggles you are going through have really touched my heart and I couldnt let myself not tell you that I admire you. You will be in my prayers and I wish you the best of luck.

  2. I love the pj's! And that is great about the therapy!

  3. Mandy,

    Thank you very much for your kind words. I'm so glad you found our site - please feel free to come back and get updates about us.

    We truly appreciate your thoughts and prayers!

  4. Erika, again thank you for taking the time to share with us about what's going on in your lives. I was thrilled to read of your pleasantly surprising experience with Caroline's latest therapy session. We will await future postings on Caroline's improved health and mobility. She sure came to the right family! You're the best and yes, the three of you are always in our prayers!

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  6. Big surprise, lots of new news and good news. I didn't expect much more to be on the blog bit just clicked on to see her sweet pictures again. Really like what you hve gooing on or her now. Love, Grandma


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