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A Rollercoaster Week: Day 7-8 - Monitoring, Weaning, Training

Monday, November 5, 2007





Sunday morning, I arrived at the hospital to find that Caroline was already off the ventilator that was attached to her trach and was breathing slowly and deeply on her own. She was also rather fidgety and seemed uncomfortable (but not in pain). We asked the ENT and others that came in to see her about her fidgetiness and they said that because she had a foreign object in her body now (the trach), it would take her a couple of weeks to adjust to it. She would also have a lot of secretions (clear mucous, like the kind that comes out of your nose) through her trach and need frequent suctioning. She had a loose mask over the trach that gave her warmed, humidified air and oxygen.

Sunday afternoon we were finally able to hold Caroline, after not being able to since Monday. She is such a little doll!

Today we held her more, including Erika’s mom who held her for three hours in a row! Caroline looks beautiful without a nasal cannula in now and she can also lie on her back without having to move her head to the side to get air. We hope that the trach will help her to develop faster and maybe even sleep better. We also hope that she will be able to get weaned off of the oxygen entirely, although at this point she is still on 35% oxygen – whatever that means (no one has given us a satisfactory explanation yet).

Now we just have to wait until Wednesday when the ENT is expected to change out her trach for the one that she will go home with. We will also need to be trained on how to suction the trach and care for it ourselves. We expect to go home sometime between Thursday and Sunday this week depending on Caroline’s recovery time.

We can already tell that having a trach is not ideal and will require additional equipment to carry around with us whenever Caroline goes out or moves rooms in our home. It is also scary to think that like her G-tube, she can pull the trach device out of her neck at anytime. But unlike the G-tube, we cannot cover up her trach with clothing to prevent her from grabbing at it. Admittedly, I am not happy at all about her having to have this trach, especially given that we came to the hospital on merely a ¼ liter of oxygen. Caroline does not seem to mind it much though, and we are certain that this is the best thing for her right now. We just hope that this does not turn into a permanent thing. We also hope that she will be able to come off of her oxygen given that we thought her airway blockages were the reason for the oxygen in the first place.

3 comments:

  1. We have been thinking about you all. THank you for so candidly sharing your experience with us. What a rollercoaster. She is amazing and you are right, beautiful. I love her precious little face. Our continued prayers for getting her home quickly.

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  2. You are amazing little Loveland family! We are praying for all of you. Thanks for sharing your little angel and the roller coaster ride you are on. We share in your hopes, dreams. heartache and joys. My favorite is the Founding Father. Loved it!!!

    Love you and keep strong!
    Wendy

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  3. Thank you for more pictures and commentary about Caroline's progress and all that has been going on. Blessings in disguise at first may be difficult to understand. We all pray the trach will help Caroline increase the ability to reach her potential by improving her physical well-being. She sure is a good little fighter and I'm sure will do her part. As Wendy wrote, we do all share in your hopes, dreams, heartache and joys. We love you and pray that the Lord's will be manifest. May His grace be with you.

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